In order to help other parents whose children have been diagnosed with craniosyntosis, I thought I’d document our journey.
So, I’ve written several posts on it, but have consolidated them on all this page for easy reference.
First Suspicion Something Was Wrong
Surgery: Ins & outs & the process
Post from the Day Before Surgery
Post from the Hospital – Day 2
Hey Jayme! Haven’t visited your blog in awhile — but I just caught up on your journey. I noticed a lot of, “it wasn’t as bad as I thought,” and “it wasn’t what I feared it would be…” Amazing how our minds latch on to the negative possibilities instead of the positive! I’m so pleased you got the positive possibilities 🙂 No regrets!
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