See this page for all of the posts related to our journey with craniosyntosis.
Here are the things that came in handy for us at the hospital:
- His blanket
- Formula – at first, they gave him ready-to-drink-because-its-already-mixed-up Similac formula, but really, it was easier to just make our own bottles that he was used to at home. The nipples that they had for those bottles are low-flow for infants and Phinehas was way beyond that! Especially as he started “eating” more because the ready-to-go bottles are only 2 ounces.
- His favorite books to read with him
- Our clothes and toiletries – we forgot shampoo & conditioner, which was a little annoying. They had towels and washcloths and all that.
- A camera
- Cash. For the hospital cafeteria. For going out and grabbing something. My co-workers loaded us up on gift cards and that was super nice since it was all to places near the hospital.
What we didn’t need:
- A fully stocked diaper bag. Particularly on operating day. He can’t have any food or even liquids until after surgery. They had plenty of toys to play with before surgery. They have all the diapers you’d ever need. It just became this big bag that we had to carry around. I guess, it was nice for carrying our camera.
- Diapers. They gave him his own pack. Weird and I’m sure we’ll pay for it somehow, but we didn’t use a single diaper that I brought.
- Clothes for him. He stayed in a hospital gown most of the time. And the PJs that I brought for him (because they zip up and don’t need to go over his head) had feet on them, which wouldn’t work because they needed access to the IVs and such. In fact the first day or two, he was just in a diaper and I covered him with a blanket while I held him.