I do plan on updating more later – I’d like to be able to help other parents with an idea of what to expect, but for now, here’s a brief update! Update: See this page for all my posts on our craniosyntosis journey.
The surgery didn’t take as long as expected, but it took longer in Recovery before we were able to get back to him. But I think that was more for paperwork reasons.
We had a good night, all things considered. It’s like having a newborn again – up every 1.5 – 2 hours. He can have new pain meds every 2 hours and he’s been waking up about 1 hour, 50 minutes ready for them. That part is actually nice because it allows the nurse to do her checking on him without waking him up! This last round it’s been 3 hours or so without him seeming to need pain meds, so that’s really progress. This last wake up, he just wanted to be held!
One of his IVs fell out (or he pulled it out) from his hand, but that’s okay because he still has one in his foot. As long as he has one, they don’t have to poke him anymore.
He’s more swollen than yesterday, but not by much. The doc this morning said that it will swell more when they take off one of the head wraps later.
One of his blood counts (hemoglobin) is low, so there’s the possibility that they’ll need to give more blood. But it’s not too low yet.
We’re going to keep doing juice & water, make sure he keeps it down and then move up to solids (which, to them, is applesauce!) I guess solids is a relative term!