First off, Happy May Day everyone! (Do kids still celebrate May Day anymore by leaving little baskets of candy at the neighbor’s doorstep, ringing the doorbell and running away? If not, that’s too bad – that was fun and like reverse trick-or-treating!)
Phinehas’s surgery is tomorrow. A day that we’ve dreaded, but also looked forward to (as it means an end to this journey and waiting!) Just some random thoughts going through my head:
- Jeff’s parents are coming into town tonight to eat dinner here in town (they love coming to the ‘bigger city’ so that they can get a good prime rib!), then they’ve rented a hotel room “for as long as Phinehas is in the hospital”. They’ll meet us there in the morning when we check in and stay as long as we need.
- Since my mom lives in town, she’ll meet us at the hospital tomorrow morning and see how things go.
- Only 1 parent is allowed to stay overnight. Previously, Jeff and I had both planned to sleep there, so we’ll just see how things go. I figure that they can’t really kick parents out or prevent someone from sleeping in a chair.
- He’s supposed to spend 1 night in Pediatric ICU, then 1-2 more nights “on the floor”. I assume the PICU is more serious than the regular floors, but I don’t know what that means in terms of our experiences there.
- I have great co-workers! A team that I work with often, but not constantly (it isn’t my primary team) gave me a card to let me know that they were thinking of me. Inside was $100 in gift certificates to restaurants that are near Children’s Hospital! This will be great for us while we’re staying there. Talk about an unexpected and completely practical gift — some of the best types!
- “They” (all the experts) say that I don’t need to do much to protect his head after surgery, but I’m just so doubtful about that. I mean, really?!? He just turned 1. He walks. He falls. He bumps. He climbs. They’ve just said “Keep the incision cleaning and healing, but don’t need to worry about the actual head”. I’m very curious to see that play out.
- I’m kind of nervous about how he’ll do eating-wise. We’re in the process of de-emphasizing bottles (formula), but he just isn’t excited about much food (except fruit and peas!) and let’s be honest — 1 year olds are messy when they eat! We’ll be packing plenty of bottles for while we’re there (my philosophy is whatever gives him comfort during this time), but this is still a worry of mine.
- For surgery, he’ll be under anesthesia, of course. But what about after? Oral pain meds? Are those strong enough for a kid that literally just had his skull cracked apart? IV pain meds? How do you stop an IV from coming out? How do you keep a one year old in bed anyway? I shudder just thinking about that.
- How much swelling will he have? I’ve seen pictures of babies who had ALOT of swelling. I’ve seen pictures of babies with hardly any swelling. Each kid is different depending on their age, the location of the fusing, the amount of work needed, and just that kid. What will he experience?
When I get nervous, I remember that this is Children’s Hospital. They’re used to nervous parents. They’re used to one year olds. They do this surgery a few times/week. We have plenty of family in town. It doesn’t stop me from wondering, but it is a nice thought. Here we go!